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Resource centre

Everything in one place

The LFA Lupus Resource Centre brings together everything we publish for patients, families and health professionals. Search it, or filter by who it is for.

Understand lupus

What is lupus?

The basics in plain language: what lupus is, who it affects, and why it is so often missed.

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Understand lupus

Causes and risk factors

Genetics, hormones and environmental factors, and why nothing you did caused your lupus.

Read
Interactive tool

Symptom reflection tool

Organise what you have been experiencing so you can describe it clearly to a clinician. Not a diagnostic test.

Open the tool
Understand lupus

Getting a diagnosis

The five steps of the diagnostic journey, why it takes time, and what to ask along the way.

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Understand lupus

Treatment and management

What treatment usually involves, what to ask, and what to do when cost or distance gets in the way.

Read
Understand lupus

Frequently asked questions

Heredity, testing, treatments, diet, pregnancy, contagion and work, answered in one place.

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Start here

Just diagnosed? Start here

Five practical first steps after a lupus diagnosis, in the order that usually helps most.

Open the guide
Living with lupus

Living well with lupus

Sun protection, pacing energy, recognising early warning signs and staying on treatment.

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Living with lupus

Lupus and mental health

Why care that stops at medication is incomplete, and what helps.

Read
Living with lupus

Lupus and work

Navigating disclosure, fatigue and adjustments, plus guidance for employers.

Read
Living with lupus

Women, pregnancy and motherhood

Why lupus affects women disproportionately, and what planning a pregnancy involves.

Read
For families

Children and young people

Lupus in childhood and adolescence, and how schools and families can help.

Read
For families

Caregiver wellbeing

Support for the people supporting someone with lupus, including our caregivers' group.

Read
Interactive

Myths and facts

Six of the most damaging misconceptions about lupus, and what is actually true.

Turn the cards
For health professionals

Recognise, refer, manage

Clinical context for earlier recognition, referral pathways and patient management in African settings.

Read
For health professionals

Research collaboration

How LFA works with researchers, and the principles we work by.

Read
Community

Warrior and caregiver stories

Real experiences from members of the LFA community, shared with their consent.

Read the stories
Community

Advocacy and take action

What we are calling for, and four things you can do to add your voice.

Take action
Community

Events and campaigns

World Lupus Day 2026, wellness days, meet-ups and the full photo gallery.

See events
Publication

LFA Newsletter, January to June 2026

Our first bi-annual newsletter: six months in numbers, World Lupus Day, advocacy, partners and community stories.

Preview the newsletter
Community

Join the community

Membership, support groups, volunteering and caregiver support across our chapters.

Get involved

All medical content in this resource centre is written for education and awareness. It is not a substitute for professional medical advice, diagnosis or treatment. Clinical material is kept under review with our healthcare partners, and we welcome correction from qualified clinicians: info@lupusfa.org.

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